22 October 2009
How can you help Allen?
• Allow me extra time to talk. Let me complete what I am trying to say before you jump in. Please be patient.
• If you can't understand me, encourage me to try another method – e.g. writing my message, pointing to an object or picture, or making gestures to help you to understand.
• Always look at my lips and face, to get additional visual information.
• Don’t be surprised if I speak slowly and exaggerate sounds.
• If you are unsure of what I am trying to say, repeat the information back to me so I can confirm that you have understood me correctly.
• Remember that I am an adult with a speech disorder, and not a child or a person with a mental disorder. Be respectful. You don’t have to exaggerate your speech and you don’t need to talk loudly. I can understand if you speak in a clear, ordinary voice.
• It’s a help if we have our conversation in a place with no other distractions and background noise.
• Always present a positive attitude.
- I started this blog in 2009 when I became a full-time caregiver. My husband had been diagnosed a few years earlier with primary progressive aphasia. Over the next four years until his death in 2013, we went on a journey of discovery about this rare condition. My blog is about what I learned, how we both coped and how the journey deepened our love and appreciation of each other. Allen’s journey is over, but mine goes on.