What follows is a copy of a 'talk' that my husband, ALLEN HARVEY, gave in Sydney recently, at the National Conference of the Australian Aphasia Association. Allen had written the text over the previous two months, and rehearsed its delivery for weeks prior to the conference, which had the name: 'Beyond Words'.
Primary progressive aphasia, the condition which is slowly eating away at the part of Allen's brain that controls speech, was the subject of one strand of the Sydney conference. Allen's presentation, which was accompanied by a slide show containing 90 photos, formed an interlude between papers presented by speech therapists with a special interest in this form of aphasia. The text of Allen's talk and a selection of photos from the slide show are included in this post.
Allen read his talk from a written text, because even though he can no longer converse fluently in complete sentences, he is able to read just about anything aloud from a written text – word-perfect, in this case. Indeed, one of the conference participants congratulated Allen afterwards, saying: "Your speech was so clear that I understood you better than any other presenter at this conference!" The training of a lifetime still serves, I guess.
Here, then, is Allen's talk...
I was born with holes in my heart.
The doctor told my mother: “He will not live beyond his thirties.”
The doctor told my mother: “He will not live beyond his thirties.”
Look at me now! 81 and still going strong.
I had my first open-heart surgery in 1962. Last year, I had open-heart surgery again. The heart was fixed OK, but I had big problems after the operation.
I have Primary Progressive Aphasia, and my brain didn’t like all the drugs I had during surgery. So! I was in Intensive Care for nine weeks.
Well, here I am again! Just stubborn, I guess.
Aphasia is a sneak. I didn’t feel anything. I never had a stroke, and I didn’t get hit in the head like some others. Actually it made me laugh when I said the wrong word, or when driving my wife asked me to turn right and I turned left. At first, I took no notice. But my wife and kids noticed.
I couldn’t remember names. I would say the wrong word and even stutter a little. This went on for some time. Eventually, we decided to see a doctor. We thought maybe I had a stroke.
I had a brain scan, and the doctor told us: “No, not a stroke. You have Primary Progressive Aphasia. There’s no known cause. And it will probably get worse.”
All my life I’ve worked in the theatre. Here’s how I got started.
When I was twenty a friend asked me, would I be in a musical comedy? “We need men for the chorus”, he said. So I said: “All right”.
I went to a rehearsal and I saw a lot of people of all ages, talking and laughing. Suddenly a voice called: “Attention, please, ladies and gentlemen. I want to do the scene in the ballroom”.
I went to a rehearsal and I saw a lot of people of all ages, talking and laughing. Suddenly a voice called: “Attention, please, ladies and gentlemen. I want to do the scene in the ballroom”.
I found out this man is called the producer, and he tells the actors what to do. I decided: that is what I want to do.
In the Sydney paper I found the Independent Theatre in North Sydney. It presented plays and also had a Drama School. So I started doing two classes a week.
Over the next five years, I learned stage management at the Independent by watching the plays, and I learned producing by watching rehearsals.
Over the next five years, I learned stage management at the Independent by watching the plays, and I learned producing by watching rehearsals.
So that’s how I got started. After that, I worked six years in stage management, production and acting, in Sydney, Brisbane, Melbourne, Adelaide and Perth.
These pictures show a few of the shows I worked on.
In 1960, Canberra Repertory asked me to be their Manager and Producer. I said yes. With my wife Meril (Grace) and sons Julian and Andrew, I was in Canberra for four years.
Next, the Elizabethan Theatre Trust and the British Council gave me a scholarship to study acting and production in the UK for one year. And the French and German embassies added some money.
Next I went as director to the National Theatre of Perth, and after that back to Canberra for a while.
Through someone I met in Canberra, I was invited to Hawaii to open a new theatre for the Bishop Museum. I stayed two years in Hawaii, producing plays, exhibits, dances and songs – all relating to Hawaiian history. I also wrote, produced and acted in a play about Robert Louis Stevenson, who came to Hawaii many times.
Back in Australia I moved into arts administration, first at the Australia Council and then as Executive Officer of the Tasmanian Arts Advisory Board.
Then I wrote two plays – one for the ABC and one for a theatre-in-education company. I also wrote dozens of radio and TV scripts for ABC education.
And I wrote and produced a series of musical revues.
In Tasmania in the late 70s I also met my current wife. Carol and I have been together for more than 30 years.
Our family includes my sons Chris and Julian, daughter Zoe and three grandchildren.
Son Julian marries Teri in September 2009 |
Daughter Zoe marries Brandon in July 2009 |
Julian & Chris at my 80th birthday |
Andrew Harvey 1959-1968 |
When I finally retired in 1996, I had been a director, stage manager or actor on one hundred and sixty different productions.
For the next 10 years Carol and I lived and travelled in developing countries, where she worked on aid projects.
We lived in the Philippines and Laos, and we stayed in Vietnam and Cambodia. We would visit villages and schools. Carol says I was like Prince Philip. I would walk behind her with my hands behind my back, and chat with everyone.
This year, Carol and I took part in an aphasia clinic on the Sunshine Coast for eight weeks. The seven couples from that clinic have now formed the Sunshine Coast Aphasia Group. We meet two times a month for conversation and activities.
At home, I spend my time writing memoires and letters, reading, doing word puzzles and computer programs for aphasia, and singing every day.
Sam helps Granpa Allen with his speech therapy homework |
I also try to keep active. I go to rehab twice a week for exercise and therapy.
And I help Carol in the garden.
And I help Carol in the garden.
12 comments:
Every day I have been checking for a new blog entry here. So what a treat today's visit was! Surely the aphasia "drama" you're now performing, Allen, must be far and away your most challenging role yet. You deserve a roaring, standing ovation for this one. And so does your "leading lady", Carol. You are both amazing, and I can't tell you how proud of you both I am. Bravo..
Nancy, Allen asked me to say 'thank you' for your kind words. And ditto from moi!
Glad to hear you are well Allen..great story...good to see those handsome pictures of you again.....You were a real "Looka"...(not that your not still ....hahaha) Take good care...
Doreen
Not only would Allen's mother be surprised, she would be extremely proud. What a great man he is. Congratulations to you both, but especially to Allen. Your speech is inspirational.
Amanda (Laos)
Hi, Carol and Allen - I've just read the blog and am in awe of the whole thing. Beautifully presented and composed - gosh you did a great job. I am in awe at it all !!! Got sentimental, of course !!
Laughed at the spelling of my name ..... a VERY good reason to choose to be called 'Grace'!!! You are both forgiven - A because of the aphasia and you, Carol, because you aren't expected to know that it's 'il' not 'yl'!!!! Nobody ever got it right! apart from that...... it was a great trip down memory lane and I'm so proud to call you both 'friends'.
Love to you both
Grace XOXOOXOX
Grace: Sorry about the spelling. My fault entirely. Have now corrected that. And thanks for your kind response to the blog. We appreciate it, believe me. Your support these past years is also much appreciated.
Ah... There's no business like.. and you are still in it mate! Well done with the speech and just keep up that singing! You never know. How old is Leonard Cohen?
My dears
This is splendid. Having spent last Christmas with you and reading all of Allen's journals, as well as knowing Carol's international work and capacity to care, I am in awe of how cogently it has all been drawn together in the presentation. I'm sure it must have had great impact on the day, as it does now. There's so much there to be wondered at, in particular the indefatigable work you've done to keep it all together. It's another triumph - and neither of you are short on those.
I loved it. Love you both.
Geoff
Wonderful to have your talk at the Conference on line Allen - I'm able to relive the moment,and look at all the photos in detail. It was a great morning, and you did a splendid job; thanks to you both. Talk with you when I'm back. Cyril
How inspirational my parents are :-)
xxx
Zoe
What a fabulous talk - and a fabulous life you both have led. I love the theatre!
Thanks, all of you, for your kind comments. And Cyril, thanks also for the photo of us you took on the day.
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